Patient Support Programme
The Eiger One Patient Support Programme provides education and support to patients with progeria who have been prescribed Zokinvy, as well as their families and caregivers.
The programme has been designed to meet the needs of patients with progeria and was co-developed with the European progeria support group, Progeria Family Circle. Their dedicated, specialised team is focused on the needs of patients with progeria. Their nurses have been trained to communicate effectively with patients and caregivers, helping them as they start and continue treatment.
Contact the EigerOne Patient Support Programme via https://onecare-eu.observia-group.com
Patient Resource Guide
Our resource guide for patients with HGPS and PL and their caregivers.
Patient Resource Guide
Our resource guide for patients with HGPS and PL and their caregivers.
Patient Information Leaflet (PIL)
The Zokinvy patient leaflet offers much information for patients and their caregivers, including how to take Zokinvy safely and more details on side effects.
Patient Information Leaflet (PIL)
The Zokinvy patient leaflet offers much information for patients and their caregivers, including how to take Zokinvy safely and more details on side effects.
Useful links
There are organisations, advocacy groups and resources offering information or services for HGPS and PL patients and their caregivers. They include:
Progeria Family Circle
https://www.facebook.com/familycircleprogeria/
Progeria Research Foundation
https://www.progeriaresearch.org/